Passover ends tomorrow. I can feel a season of my life passing with it. A wintery storm dominated the last four months of our family’s life. Beginning on my daughter’s birthday, December 7th to tomorrow, April 7th, one disaster followed another.
On Clementine’s birthday, she and I went to visit her great-grandmother, my husband’s grandmother. That day we found out that Grandma Pat was not doing well. At 89 years old she was living independently, paying her own bills, had only recently stopped driving, and had control of her mental and physical faculties. But she wasn’t getting around well. And she wasn’t thinking very clearly. And she was very uncomfortable with her medical care. She had a deeply entrenched depression, and she begged her daughter to put her into hospice.
Dave and I began to visit more often and tried to take on a more helpful role. We began visiting near daily. On the 40th day of our visits, Grandma Pat had passed away. Home hospice had come in. Grandma Pat had relaxed into the care of strangers and on into eternity.
I had a very difficult time accepting this. It was maddening to me to watch her let go of her hope—literally maddening, I was worried about my mental health during this time! Later a hospital chaplain at Lucile Packard Children’s Hospital told me, “It sounds like it has been difficult for you to let go of your vision for her life. You had a vision of joy and longevity for her, and that is not what happened.” This helped let go of her life and release her death.
The hospital chaplain— that’s one other story. The night after Grandma Pat’s passing, Clementine was in the emergency room. She had been vomiting frequently. We’d be back in the emergency room a few weeks later. Clementine had a golf ball sized lump on the left side of her neck. After a week of Clemmie not taking her antibiotics, and diagnoses from swollen lymph nodes to cat scratch fever to hematoma floated, her lump was inflamed and her pediatrician instructed us to rush her to Stanford’s ER and told us to pack a bag because she’d need surgery and to be admitted for a few days.
Well, she was admitted for a few days, for eight days in fact. She had a 4cm abscess that the surgeons kept calling “impressive.” That is code for “scary.” She had to go under anesthesia twice. That reduced me to a puddle of crying mommy. She had to have four different IVs put in and underwent twice daily blood draws— all under the restraining talents of seven adults, two parents, and special ultrasound tools. Whenever the lab sent just one person with a tray of tubes, we’d ask, “they didn’t tell you about her?” A sort of “you’re gunna need a bigger boat.”
After a few days, we were probably going to get to go home. They had removed the drain that had been TWO inches in her neck. Clemmie was riding around the cardiovascular unit in a red wagon when I noticed a growth on the right side of her neck. We had known there were four smaller abscesses on her right side. One could not be “needle” aspirated because it was behind her carotid artery. So we had to let it grow.
It has been growing! Clementine’s “owie lump” has taken us back up to Stanford every week since we were discharged. It is still really red and leaky sometimes, but our wonderful doctor has been needling it in her clinic and doing everything in her power to keep Clemmie out of the hospital. Dr. Ahmad is aware that Dave was recently diagnosed with testicular cancer, so she has been doing her best to help us minimize the stress of Clementine’s treatment.
When I say that Dr. Ahmad is aware Dave was diagnosed recently, I mean that he was diagnosed with cancer while we were admitted at the children’s hospital. The week after we got home from Stanford, I was back in Palo Alto for Dave to have surgery to remove the tumor. The next day I made the trek again for Clementine’s abscess to be aspirated in clinic. This means she was strapped into a straight jacket on a table in what looks like an optometrist office and stuck with a syringe. Once pus begins to come up into the syringe, the doctor hand presses out an entire vial of infection and then some.
The medical procedures are barely half of it. We took the child life specialist’s advice and bought Clemmie medical toys for play therapy. From playing with her, it seems that the most trauma has been sustained in administering her antibiotics at home. I completely agree with her! That has been quite traumatic for me as well!!
Dave has been recovering emotional and physically from his surgery. We are waiting for his follow-up appointment to find out what the next steps in his treatment will be. We also will need to take steps to treat and accommodate the degenerative arthritis in his lower back that was revealed in a CT scan that was looking for more cancer.
Talk about the angel of death! I will be happy to see him pass over! The intensity of these past four months, and the fear of loss, has completely overhauled my stress coping skills. The only coping skill I have had, is to trust God. This is not trust-fall trust, this is like Crouching Tiger, Hidden Dragon leaping into ether trust.
That day we first took Clementine to the emergency room in Monterey was February 28th. This year that was the date of Purim. Purim is the holiday established in the book of Esther. It commemorates the uncovering of an evil plot to destroy God’s people. The result of the plot being uncovered is that God’s people were able to be armed to defend themselves against the coming attack.
Purim is a major Jewish holiday. The next major holiday in the Biblical calendar is “Pesach” or Passover. Passover lasts a week with a feast on the first sabbath and a feast on the second sabbath within that week. Tomorrow is the “2nd Passover” feast. I felt very strongly in the weeks leading up to Purim that we were in a season of exposure true to the theme of Esther.
It was! Illness that was fomenting in the dark was brought to light during Purim. It is painful to face six weeks of hospitals, anesthesia, surgeries, wage losses, fear of death! But hidden threats are far worse than those exposed. Praise God that he revealed the threat!
Physically and spiritually we are constantly under threat. You know, like, wash your hands ’cause bacteria, viruses, and parasites are basically continually plotting against us;) Passover celebrates protection. It reminds us of salvation and deliverance. My hope is that with the end of Passover coming, that I will in fact see that salvation and deliverance of the Lord.
This season between Purim and Passover has been unreal. I wouldn’t trade it though. As with all our trials, the Lord doesn’t just give us resources in tough times, He gives us Himself.